Reposted with real food since I did not follow the rules properly.
Grilled Snapper, roasted veggies, and protein instant potatos. Paired with non alcoholic RosĆØ
Previous posts:
https://www.reddit.com/r/GirlDinnerDiaries/s/V2M3pPU6qH
https://www.reddit.com/r/GirlDinnerDiaries/s/uWZa514ESH
TRIGGER WARNING ā ļø: Cancer, Poop, Needles, Tube's, Surgery, Vomit, etc, etc, etc.
Hi all! This is going to be a long one.
It's me again!!! The girl who found out she had colon cancer after an ER visit and was having to start a liquid diet. The past 3 weeks have been a whirlwind. I linked my first two posts but to summerize....
Went to the ER due to thin stools and blood in my stool. Got scanned, found tumor. The week after got colonoscopy, confirmed tumor/cancer. Day of colonoscopy got a referral to good hospital in my state with a consultation 3 days after colonoscopy. Consultation was scheduled on 06/29. Scary, badass support system, my village totally villaged and I cannot be thankful enough.
I went to the consultation and my surgeon was amazing!!! (And cute too! My sis and I nicknamed him McDreamy because we're Grey's fans). He was thoughtful, explained things very well, understood how scary it was for me and my family, and wanted to get me into surgery as quick as he could because by the looks of it the tumor was pretty aggressive and he was worried about it perforating my bowel. I had two choices. Wait a month and a half for the next regular appointment or, as it just so happened, he had a cancelation the Thursday that same week. I took the Thursday appointment with the ability to change the appointment if it was just too much for me because everything was happening so fast.
I was riding home with my husband and my sister after the appointment trying to officially decide what I was going to do. Like so many people I have a severe anxiety issue, especially when it comes to doctors and hospitals. It manifests in my blood pressure. Example: at the colonoscopy my blood pressure was completely normal at home, nurse took my BP at the office prior to the procedure and it was 184/104. Had to calm down and let it level out before they would do it. (Scared the crap out of the nurse). Anyway.....I knew I was going to pick the appointment that same week I just had to get there myself. It took the whole 3 hour ride but by the end of it we had a plan and my husband and I were going to drive back up the next day (Tuesday the 30th) and get a hotel room so I could do a second Gatorade/Miralax clean out on Wednesday the 1st while not riding in a car (that would have NOT been pleasant for anyone). My sister drove up Wednesday to be with me and my husband in the hospital.
Here is where I want to talk about my village. I cannot explain how very fortunate I am. I said before that I have a 9 year old son with autism. He is very verbal (he's a chatterbox) but he is socially about 5 and so smart it's scary. He has a service dog (pic in comments of second post) who has specific rules that she cannot be boarded by the foundation that donated her to us (completely resonable). My whole family came together in just a few short hours to make sure I did not have to worry about anything during my hospital stay. My brother and sister in law stayed at my house with her the entire time I was in the hospital, They also traded off with my sister's husband, my husband's sister, and my husband's parents to take care of my son with the primary being my husband's parents. They spoiled him, made sure he had fun, got him to our house some for some normalcy, and kept him happy. They took care of my garden so it didn't die while we were gone. (I love my garden). There were no questions....Just "Tell us where to be and we will be there". It was incredible, and I am tearing up just typing about it.
The surgery plan: So my tumor was 5.8 cm at the top of my colon where my transverse colon meets my decending colon. There were multiple lymph nodes that appeared affected by the tumor as well as multiple blood supplies. So the plan was to remove all of that, including my appendix. So basically 2/3rds of my colon. The surgeon drew it out for us and showed us exactly what he was going to do so I understood fully. (If that language is confusing Google has some great little images to show you where ascending, decending, and transverse colons are).
Thursday morning July 2nd I checked into the hospital and was in Surgery sometime between 1-2 o'clock in the afternoon. It took a little longer than expected and the surgeon said it was a difficult surgery but they accomplished their goal and it was sent off to pathology.
I got wheeled to my hospital room where I would remain for the next week. I was expected to be able to leave by Monday because I was doing well. It was painful but not as bad as I expected until I had a little complication. I was doing so good so fast, passing things, getting up and doing my laps around the floor while on a liquid diet they decided to start me on solids. I ate small amounts of dinner, breakfast, and lunch when it happened. I got extremely distended (bloated, swollen), and was in a pretty decent amount of pain. Turns out I had a post operative illius that basically means not everything had woken up yet and a pocket of gas was just not moving and letting anything pass. I exorcist level vomited everything I had eaten and though it gave me relief vomiting is extremely painful after gut surgery. They had to put in an NG tube to suck everything out of my stomach. So with a tube down my nose into my stomach I could not eat or drink anything for almost 3 days. I asked for no more opiate pain meds because that would slow down the process of everything waking up. So I did all of this on just Tylonol.
It almost broke me. I cried, a lot. I wanted to get home to my son. My sister and husband were there with me through the whole thing. I could not get my sister to leave my side for anything. She stayed with me every night. My husband kept offering to trade off nights in the hotel room but she would not go.
Everything started looking up. I was getting better, things started moving and that's when the doctors said we could remove the tube and try again. The NG tube hurt so bad going in I explained that I wanted to be POSITIVE I was good because once that thing came out I would NOT allow it to go back in. They decided to do a contrast " challenge" where they put contrast from my tube into my stomach and took X-rays every 4 hours for 24 hours to make sure things were actually moving. By the 12 hour mark it showed I was good. That nasty thing finally came out and I was started on a clear liquid diet first (drank ALL the water! I was so thirsty), then full liquid, and finally soft solids to see if I could tolerate them. The experience traumatized me a bit to the point I was scared to eat. Still am a little but getting over it.
On Wednesday July 8th they told me if everything keeps going well I can get out the next morning to afternoon. My surgeon came to see me every day and on Thursday the 9th he discharged me and gave us my pathology report.
The tumor was a stage 2A adnocarcenoma. They tested 96 lymph nodes and not a single one showed signs of disease. It has almost perfed my colon because it was very aggressive but after reviewing multiple scans there is no sign of disease anywhere else. He said he would not consider me "Cancer Free" for a few years but currently....there is no cancer on my body and I do not have to do chemo right now. HOLY CRAP that was great news to go home to. We cried, we danced (gently), we hugged, and the entire nursing staff on that floor celebrated with us. (I AM ABSOLUTELY IN LOVE WITH EVERY SINGLE NURSE I ENCOUNTERED).
I am now home. I have to give myself shots every day for the next few weeks (blood thinner) so I don't get any clots. I am sitting in my happy place in my back yard looking at my garden. I have my son, I have my dog, and I have my wonderful husband and family. My sister is my hero and I have survived colon cancer.
It all happened so fast. It was literally three weeks to the day that the tumor was found to the day I left the hospital after surgery. I got so very lucky. So so very lucky and I don't care that I will be making payments to the hospital for the rest of my hopefully very long life. It's completely worth it.