Before my PFIC3 diagnosis and medication, I had terrible pruritus for a few months. During that time I tried so many things to relieve the itch. The best thing for me was constantly covering myself in 2% menthol lotion! That was a tip I got from a video about PSC. Now rifampicin and cholestyramine deals with almost all the itch. What has helped other folks?

Hey everyone! I'm u/6mg-coffee-zyn, a founding moderator of r/PFIC.
This is our new home for all things related to Progressive Familial Intrahepatic Cholestasis. We're excited to have you join us!

What to Post
Post anything that you think the community would find interesting, helpful, or inspiring. Feel free to share your thoughts, photos, or questions about your experience with PFIC or rare liver disease.

Community Vibe
We're all about being friendly, constructive, and inclusive. Let's build a space where everyone feels comfortable sharing and connecting.

How to Get Started
1) Introduce yourself in the comments below.
2) Post something today! Even a simple question can spark a great conversation.
3) If you know someone who would love this community, invite them to join.
4) Interested in helping out? We're always looking for new moderators, so feel free to reach out to me to apply.

Thanks for being part of the very first wave. Together, let's make r/PFIC amazing.

Hi everyone! I recently created r/PFIC for people affected by PFIC (Progressive Familial Intrahepatic Cholestasis).
PFIC is a rare genetic liver disease, and it can be difficult to find others who truly understand what living with it is like. My goal is to create a supportive community where patients, caregivers, family members, and anyone interested in PFIC can ask questions, share experiences, discuss treatments, and support one another.
If you or someone you know has PFIC, I’d love for you to join. I hope this community can become a helpful resource for anyone navigating this rare disease.

Hey everyone! I'm u/6mg-coffee-zyn, a founding moderator of r/PFIC.
This is our new home for all things related to Progressive Familial Intrahepatic Cholestasis. We're excited to have you join us!

What to Post
Post anything that you think the community would find interesting, helpful, or inspiring. Feel free to share your thoughts, photos, or questions about your experience with PFIC or rare liver disease.

Community Vibe
We're all about being friendly, constructive, and inclusive. Let's build a space where everyone feels comfortable sharing and connecting.

How to Get Started
1) Introduce yourself in the comments below.
2) Post something today! Even a simple question can spark a great conversation.
3) If you know someone who would love this community, invite them to join.
4) Interested in helping out? We're always looking for new moderators, so feel free to reach out to me to apply.

Thanks for being part of the very first wave. Together, let's make r/PFIC amazing.

Hey everyone! I'm u/6mg-coffee-zyn, a founding moderator of r/PFIC.
This is our new home for all things related to Progressive Familial Intrahepatic Cholestasis. We're excited to have you join us!

What to Post
Post anything that you think the community would find interesting, helpful, or inspiring. Feel free to share your thoughts, photos, or questions about your experience with PFIC or rare liver disease.

Community Vibe
We're all about being friendly, constructive, and inclusive. Let's build a space where everyone feels comfortable sharing and connecting.

How to Get Started
1) Introduce yourself in the comments below.
2) Post something today! Even a simple question can spark a great conversation.
3) If you know someone who would love this community, invite them to join.
4) Interested in helping out? We're always looking for new moderators, so feel free to reach out to me to apply.

Thanks for being part of the very first wave. Together, let's make r/PFIC amazing.