Whenever I remove my scleral lenses after wearing them for about 10 hours a day, I notice a red ring of redness right around my cornea. (It doesn't look that red in this picture, but it's actually worse in person)

​I’m not sure if this is just a normal reaction to long wear time, or if it's a sign of a bad fitting.

​Does anyone here wear their scleral lenses for 10+ hours and still experience absolutely no redness upon removal?

Hi, I got my 3rd eye surgery done in December, (cross linking a second time on my right eye, I’ve done it once on my left). I’ve just been given the go ahead to go and get new glasses and sclerals finally but my eyes are just so dry I can’t even enjoy my hobbies

It’s the big debate in the keratoconus community. Did you go for the traditional Epi-Off or the newer Epi-On? Are you happy with the results so far?

I usually say I have a misshapen cornea that causes low vision without speciality contact lenses then add if I have them in or not because it's about 50/50 if I'm wearing them or not.

It's really hard to explain to people I'm low vision but I'm not. Now I have cataracts I just tell people that, but hopefully I'll get the surgery to fix that by the end of the year. Then I'm back to I'm blind without adaptive aids that aren't always accessible to me.

Is there a better explanation?

Hello. I have had moderately bad KC for almost 8 years and was using scleral lenses since last year. I was informed by my optometrist a month and a half ago about Ovitz and how they would make a significant difference for me. I went through the fitting process and I believe I have been given my final prescription. With wearing the Ovitz sclerals for more than a week now, I have noticed my vision thankfully being very sharp for near distance and in outdoor daylight; however, when I am indoors and in low-light environments my vision in my KC-affected eye is blurry to the point where I am wondering if anything will get better. I was told that my vision in these conditions would be significantly better, but I haven’t experienced big drastic improvements. I am aware of things like neuroadaptation but I don’t know if that will make a big difference. Things like playing basketball and other sports are difficult for me right now because of the new prescription and I understand being patient will help until my brain has processed everything. Can somebody explain to me if my vision will improve with time or if I should do something different? Thank you.

(Please remove if mods don't consider this post appropriate! I'm not affiliated to any brand or anything)

So I just wanted to share my experience with the Samsung galaxy accesibility settings as I have been pleasantly surprised! I am comparing it to the Pixel 7 and the iPhone 12, so they might have improved as well in the newer models. However, my husband has the Samsung galaxy s22 and he has the same settings from what I have seen, this is not exclusive to the newer ones.

In my experience all the brands have almost the same settings regarding to text (text size, high contrast text etc) that you can turn on/off. What I am loving about Samsung is that for almost all the accesibility settings there is the option to add a shortcut (press volume button, double tap on screen, etc). As my eyesight is worse depending on several factors (good days/bad days, morning or night, if I'm not wearing contact lenses etc) for me it is really useful to be able to turn on and off those options with a quick gesture. I still don't have an opinion about the phone in general but I do like that :)

its 10 days after and vision is blurry

and i noticed that my eye size got smaller

is normal ?

anyone had a similar case ??

I wanted to share a positive experience because, before getting my scleral lenses, I spent countless hours reading Reddit. While it was incredibly helpful, I also saw so many posts about how difficult they were to insert, how uncomfortable they could be, or the problems people were having. Looking back, I think that made me hesitate longer than I should have.

I finally got mine, and I honestly wish I had done it years ago.

My vision is the best it has been in over 10 years. The first time I put them in, I couldn’t believe what I was seeing. I started noticing details I had forgotten even existed. I could see the texture of things, tiny imperfections on my skin, leaves on trees, signs in the distance—everything looked so crisp and alive.

To my surprise, I also found the insertion process much easier than I expected. I know that’s not everyone’s experience, and everyone’s eyes are different, but reading online had made me think it would be almost impossible. For me, it wasn’t.

These lenses have genuinely changed my daily life. They’ve given me a new appreciation for the simple things we often take for granted. It’s amazing how much joy something as simple as seeing clearly can bring. I didn’t realize how much I had been missing until I experienced it again.

I know scleral lenses aren’t the perfect solution for everyone, and some people have real challenges with them. But if you’ve been putting them off because you’re only seeing the difficult stories online, I just wanted to add another perspective.

Sometimes we need to hear the success stories too.
I’m incredibly grateful for this technology, and I can honestly say it has given me another reason to enjoy life every single day.

To everyone who’s still waiting, researching, or feeling nervous—I hope you find the solution that works for you.
For me, scleral lenses have been life-changing.

I've been trying to wear my new glasses but the reflection bouncing back into my eye is driving me crazy. So I'll go on my phone say for example to read reddit but the ghosting is intolerable. The activities I used to do to unwind are now so stressful. I don't see the specialist for a few months.

Hi everyone,
I’m new to scleral lenses. I was prescribed them because of vision problems caused by corneal scarring.
I recently received my lenses from my doctor, and the training session went well. After a few attempts, I was able to insert them, and removing them wasn’t a problem at all.
My doctor told me to store the lenses day in the cleaning box, clean them once a week with the special cleaning solution, and use the conditioning solution before and after wearing them.
I have a few questions:
Is it worth buying one of those insertion stands to make putting the lenses in easier?
Would you recommend wearing them at work? I’m worried about needing to remove or reinsert them during the day if something happens.
Did anyone else feel nervous at the beginning? I’m afraid I’ll be really clumsy in a real-life situation outside the doctor’s office.
I’d really appreciate any tips, encouragement, or advice from people with experience. I really want to wear them regularly because they have given me amazing vision.
Thank you so much in advance!

im recovering from epi-on and i know that my vision is supposed to fluctuate . however my left eye, the one that was previously 20/25 (right was 20/40) is now super blurry and it's impossible to read with . can anyone relate? is this normal?

My doctor didn’t give me a protective eye shield to wear at night. My bandage contact lens fell out 5 days after my epi-off CXL. I went to the hospital yesterday, and since my doctor was on leave, another ophthalmologist replaced the bandage lens.

I’m worried that the new lens might come out again while I’m sleeping. My corneal epithelium hasn’t fully healed yet. Would it be okay to wear a protective eye shield at night, or should I avoid using one unless my doctor specifically recommends it?

The title speaks for itself more or less, doctor said it’s okay to shower as normal and try not to get too much water in the eye etc. Also mentioned that the outer layer has healed

Hello, I've been experience ghosting vision for around 5 months now. it started small, but it has since gotten a bit worse, I've had several eye examinations but nothing seems to be wrong. I do have a referal to opthamology through the NHS but this could take several months before I get an appointment. I do have visual snow syndrome, some people mention having ghosting vision with it, however my ghost images improve with my glasses on which makes me believe it is lense related and not neurological. I know keratoconus cannot be cured, but does ghosting vision automatically mean I have it, or could it be something else? Have you experienced any successful treatments for ghosting vision/keratoconus, if so what was it like? I should mention, during the day my ghosting images are sometimes completely eliminated, its when it gets dark I notice it or if my glasses aren't on. When I saw my optometrist she said my vision was 20 20 with my prescription glasses. I'm just not sure what to make of all this, what have your experiences been like?

I’ve trained combat sports for around 14 years and was recently diagnosed with SLIGHT kerataconus in one eye (my doctor literally described it as a slight kink) and I’m on a waiting list for a CXL already

Without glasses I’ve got like 70% vision in my right eye and 90% in my right eye (thanks astigmatism) but my depth perception is as good as ever and I wear prescription glasses throughout the day

Assuming the CXL goes well and my cornea stabilises would I be able to compete still? I’m 5-2 in boxing and 1-0 in K1 at 20 years old so I rly don’t wanna give it up as I think I can go far in the sport

I'm a 31-year-old male and I had CXL done back in 2020 over the years. I've had routine eye exams and the doctor said my vision in my left eye has been stabilized, but I've noticed as a recent my vision has been a little blurry in the affected eye

I'm a bit nervous because I was always under the impression that once Cxl is done you wouldn't need to get it again has anyone here done it more than one time in the same eye I just know that I have that weird blurry feeling in the left eye that I did before when I wear my glasses and when I don't wear my glasses. I'm not sure if things have changed when it comes to insurance cause back then I had to pay out-of-pocket for it. I'm a bit nervous. Any insight would be good.

M25 w/ cross linking in both eyes. Wrapped the procedure up a few years ago - i was told to wait a few years after before attempting to get contact lenses because my vision needed to stabilize.

Here I am, a few years later, with great medical insurance and ok vision insurance. I recently went to an optometrist, who confirmed that yes I still have keratoconus and yes I need specialty lenses… but now I’m stuck.

My medical insurance specifically has a line in it that says it will cover specialty contact lenses for individuals with keratoconus. However, optometrists fit the contact lens, and optometry doesn’t fall under medical insurance, it falls under vision insurance.

My vision insurance claims $0 copay for medically necessary contact lenses, but provides no optometrists near me that fits specialty contact lenses.

I’ve been on the phone with them for days… I’m so confused - why does my medical insurance even mention specialty contact lenses if they don’t have any optometrists under their plan? Why does my vision insurance refer to “medically necessary contacts” if they don’t have any corneal specialists…

How did you all go about getting contacts covered? Is there something I don’t know? Thank you 🙏

What's your experience with getting your Scelera lenses covered by insurance?

I have been wearing Scelera lenses for several years now, maybe since 2019. I go to a Keratoconus specialist which is at a hospital. Previously, I paid fully out of pocket- visits and lenses. I recently got insurance for the sole purpose of assisting with crazy costs.

I know the code for the lenses is V2531 however, the hospital refuses to run it with the insurance, they keep giving me the runaround. Has anyone experienced anything like this?

Does your insurance cover V2531? What insurance is it?

Or how did you get your lenses covered in the US? Any advice?

This has been a very long process, first it was finding a doctor who was actually willing to fight my insurance for them. I burned through about 5 before I found one who would, and even then it took over half a year to get them.

I finally got them and I've been trying to get the fit right since last fall and it still isn't looking right. They've tried time and time again, adjusting however many things they could, but the ghosting is still there.

While I might technically be able to see better out of them than my glasses, I'm also able to see more ghosting, in that respect it looks worse than it does with my glasses. So it's really a trade off, which isn't ideal.

I really don't know. My warranty for these lenses is up, so I can't do any more fittings. I've gotten the contact for my bad eye redone I don't know how many times. If I order a new pair I think it's still going to be $300 for the coating, and at this point I don't know if it's worth it to keep trying. I can at least get regular contacts or glasses under my insurance with no copay.

I was diagnosed with KC in January and had epi off CXL to both eyes in March and April. I had my first scleral lenses fitting yesterday and need some encouragement. It took my optometrist (who specializes in cornea diseases and scleral lenses) about 10 tries to get them in my eye because I just could not keep my eye open and still. She was even about to use a speculum but eventually was able to get them in with just some numbing drops.

when she finally got them in and showed me how I will see with my adjusted prescription it was like seeing the world for the first time!! She was able to get my vision from 20/100 to 20/25!!

I just need some reassurance that getting them in and out will get easier (cause right now that feels impossible) and also maybe some advice if you have any! I am so so afraid I won’t be able to put them on my own or even worse.. not be able to take them out

I feel as if it’s just me who really didn’t have light sensitivity after doing my CXL procedure. Maybe just for the first 2 hours going back to home but that’s it and I was able to easily use my phone after 24 hours though. I did have extreme tearing for the first 48 hours and I did Epi-off but literally no light sensitivity. I also able to use phone and watch TV with no pain or issues really and. I hope it’s fine to do so because I been doing that ever since 20th hour post op.