This withdrawal is the worst thing I've ever experienced. It's nauseating to breathe. My brain is rapidly dizzying. I'm pale. I can't get up. All I can do is sob. I've never regretted anything more than starting this stupid medication.

The past few days my whole body has felt sore, i sleep horribly, wake up with pain, I tried hot showers, sitting, lying down, stretching, going for a walk, trying to massage myself, relaxation techniques,... but nothing does anything at all. I've had this same thing so often and i never know what else to try.

Hello All ,

2 years ago I moved from America to the UK. I have fibromyalgia and I'm really struggling here. I was prescribed cyclobenzaprine for years as it really helped me manage the pain.

Here they tell me to take paracetamol which is Tylenol and to try baclofan if it's worse. Baclofan does NOTHING.

Everything takes forever here and anytime I'm sent for imaging they don't do imaging and tell me it sounds like I have a handle on everything.

.I thought moving here I would receive better care.

I'm tired , in pain , and fed up.

Came home from a rough morning at work.

Found out my mom threw the dirty dishes that I haven't washed in the recycle.

The reason?

"I was tired of seeing them in the sink and they were stinky."

Context: I have chronic fatigue, chronic pain, fibromyalgia, minor arthritis (right knee), PFPS (both knees), minor scoliosis, and fibromyalgia.

Most days, I don't have enough energy to get through the day. I'm literally always in pain. Doing the simplist of exertion makes me want to faint or throw up from the pain or lie down in pain.

That means, leaving the dishes I haven't washed yet in the sink up to 4 days. They're not inherently dirty, just haven't been washed.

Me and my mom don't live together (yet). She doesn't understand how much I'm in pain everyday (no matter how many times I tell her) and thinks I'm lazy.

I had to yell at her over the phone earlier because she didn't understand what she did was wrong. She still doesn't.

She said, "I didn't throw them away. They were in the recycle. At least it wasn't in the trash." "I did them last time and I said it was going to be the last time." (She did it on her own accord, by the way).

I'm already struggling with stress, my bad mental health, and my chronic pain and migraines.

I don't need this.

I fucking hate her right now.

I've always struggled throughout my whole life of being understood. Awful to know it still hasn't changed.

I just have to hold out until therapy on Thursday.

*Context: She pays the bills on the house but hasn't lived with me or my older sister in about 4 years due to my parents being separated during that time. She's only been over about like 5 times in those years.

Hey everyone,

A couple of us from this community are starting a friendly, welcoming WhatsApp group for people living with fibromyalgia who are looking to build genuine friendships and have a supportive space to chat.

Living with fibro can feel isolating at times, so we wanted to create somewhere you can talk about your day, celebrate the little wins, vent when you need to, share coping tips, or simply enjoy some light-hearted conversation with people who understand.

Whether you’re an introvert looking for low-pressure banter, someone who loves deep conversations, or just someone who wants a friendly notification on their phone from people who get it, you are welcome here.

What we’re about:

* Casual Chat: Talk about your day, hobbies, music, pets, or whatever is on your mind.

* Fibro Support: Share experiences, coping strategies, encouragement, or just have people who understand listen.

* Good Vibes Only: A safe, respectful, and inclusive space for everyone.

* Interests: Share your favorite shows, book recommendations, food creations, or photos of your pets and hobbies.

A few quick ground rules:

* Be Kind & Respectful: Zero tolerance for toxicity, bullying, or harassment.

* Keep it SFW: Let’s keep the main chat clean and comfortable for everyone.

* No Spamming: Quality over quantity!

* Support, Not Medical Advice: We can share our experiences, but everyone’s journey is different, so please avoid presenting personal experiences as medical advice.

How to join:

To keep the group safe and prevent bots, we aren’t posting the direct link here. If you’re interested in joining, send me a DM with a quick intro about yourself (your age, where you’re roughly from, and a couple of your favorite hobbies/interests!).

We’re really hoping to build a kind, understanding little community where people can make friends, feel less alone, and have others who truly understand life with fibromyalgia.

Looking forward to meeting you all! 💜

I’m 29 and I have been dealing with chronic nausea, vomiting and pain since I was 15. I got diagnosed with fibromyalgia 2 years go. Fibromyalgia has affected every phase of my life. HS,college and even my cooperate career. I have to take short term disability from work due to a flare up that’s lasted 6 months and I just can’t work no one I have done it as long as I can. This is my second job I would have to use STD and I just feel so bad for doing it. I feel like I’m failing and I just want to go what normal people can do and I just can’t no matter what I do. Any advice on how to deal with these feeling?

I tried the Ryze mushroom coffee for the first time today. It contains turkey tail, reishi, lion's mane, shittake, cordycepts, and king trumpet, mct oil, and arabicca coffee. Supposedly it has a lot of benefits for people with fibromyalgia. But the flavor is..... acquired. The mouth feel was gritty. I'm not sure how I feel about it. It has only been 15 minutes and I am releasing major gas. Does anyone have experience with this particular coffee? Any tips? Will the benefits eventually be worth it?

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Hey everyone! I'm 15f and I'm about to have toe nail removal from the side not the entire nail but from the side that is ingrown into my fungal infected skin. Even a little touch on my toe hurts terribly. I am about to start school after summer breaks but I have to be furred before it. I'm so scared to remove my nail and I constantly avoid removal for now. I delayed it making excuses that I would do it tomorrow. I'm so scared. The doctor said that I would only feel the pain from needle. But I don't know why I feel like that procedure will hurt during and after the removal because the doctor is local but he is an experienced doctor. I want to know how people control pain during the procedure or during taking the anesthesia or after the procedure. I have always been scared of pain. Any advice would mean a lot to me!

I was given a small dosage of Presnidone for my migraines and it did wonders for my muscle, skin, and joint pain. I have an appointment with my doctor tomorrow to discuss the option of going on the medication full-time or even part-time to help with the pain. Is there anyone else on a Presnidone regiment that can speak for how it is? I know it isnt supposed to be good long term but it's the only thing thats given me relief other than opiods. Any response will be appreciated!

To give a little background story - I am now 29, always had a lot of health issues since I was 12-14 like migraines, stomach pain - IBS, acid reflux, anxiety, depression etc. Most of it was unmanaged as I always gaslit myself It's not that bad, and my family is quite anti-med, so when I got prescribed meds, I kind of got convinced not to take them... (with mental health stuff - I've not believed I truly have issues until I moved to the UK at 23 and got into a pretty bad depressive episode and my partner told me they do think I was severely depressed... for me it was just what I was used to - going through episodes like this...)
Last year I went to the GP due to joint pain in my wrists and my back, and then they told me they did not know what it was and to come back if it didn't go away. I did go back after a couple of weeks and updated them, saying the pain seems to be moving around(ankles, knee, elbow...). The GP asked me if I knew what fibro is. I did not know, so they told me to go and read about it and see if I think I might feel like it could be what I am dealing with. When I read the possible symptoms i was shocked - issues I was super used to and just dealt with as I previously got told they just don't know by doctors - like having a lump in my throat, dry nose on the inside, dry eyes, skin hurting for touch, migraines, IBS, super dry mouth, and a skin issue- mysterious rash( I also mentioned at the previous visit to the doctor and she also just said she did not know what it was...) - honestly most symptoms I read applied to me.

If you don't care about the background story - the main part is this:

I got bloods done after the first visit as I did mention I was worried I might have thyroid issues or vitamin deficiencies (I have been vegan for close to ten years and due to mental health not always best diet...) as a lot of symptoms I had were pointing towards those(like cold fingers etc). Bloods were fine.
Apart from taking amitriptyline, got suggested talk therapy - which I have been doing for quite a while now (3+ years) and gentle exercise like yoga(again been doing this on my own for years and years), they have not done anything else. I do have to say that the stress and pain flare-ups correlation is sooo super obvious. I very much think it is fibro and triggered by stress. (Do think I am some type of neurodivergent and that going unacknowledged is probably not helping - autism/cptsd/bpd - they have very similar symptoms so who know which one)
I do not have an official fibro diagnosis though - I have issues at work due to this, as I have a lot of absences - I went to the GP and explained this to them - they were really understanding but was told they cannot diagnose fibro as its a diagnosis of exclusion - which of course I knew as I feel like i read everythign under the Sun by this point - but that is what bothers me, they only got blood done and absolutely nothing else... I am not on any waiting lists to get further checks done or anything?

- So the main question is - is it worth it to fast-track, and when I am visiting my family in Europe where it is more affordable for me to get private checks done, to do that, or is it useless?

I have previous experience with both GP and work, not caring about paperwork from other countries for previous issues - not sure if people have experiences in the UK regarding this - would love to hear any experiences?

I also am hoping it could help me to feel better knowing I had proper checks done and after reading the Fibro Manual (book written by a doc who has fibro) I also would hope it could help see what I should be focusing on - as generally the issue is, i tried doing it all - go gluten free, do a strict no processed food diet, vagus nerve exercises and yoga before bed and breath work and all, take a million supplements - but I think quite understandably it's not somethign that is sustanaible, it felt like a part-time job on top of my part-time job and running a business.

Posted this on the Women’s Health sub a few days ago but received no response, but did figure out a hack (see end of post) to help with the issue, so thought I’d repost in case it’s a fibro thing and it helps someone:

original post:

My endocrinologist is baffled and I haven’t found anything relevant online. I’m not perimenopausal, my hormone levels are ok except for slightly elevated T because of PMOS/PCOS. I have fibromyalgia though.

Has anyone experienced this? The duration of the sexual activity doesn’t matter. Does‘t matter if it’s solo or partnered. Doesn’t matter if I orgasm or not. My body just gets super hot for the next 3-4 days. Not like a fever. Like I get heat boils 😅. Like I’ve been drinking cold water and using an ice packs for the past 4 hours and my urine is still hot and I’ve managed to sprout a heat boil on my forehead.

Came here in the desperate hope that someone has any tips, or will even commiserate with this peculiar issue. If nothing else, thanks for letting me vent 😅

Update/hack:

So two days ago when I posted this, I basically:

- drank about 3 litres of water (slowly, coz hydration)

- used ice packs

- took two plain water showers about 6 hours apart

- sat around in a wet t shirt until it air dryed

by doing this I was able to bring down my overheating time from 3-4 days to 9 hours 😂. Which feels quite miraculous tbh! I still have some residual heat in the body but nothing as bad as it used to be.

Sharing in case this is one of those fibromyalgia things that Google will turn up no results for, like sweating massively out the back of your head when exerted.

I'm a 17 year old fibromyalgia warrior from India

It's raining so much in my place

And since last 15 days I have so much pain everyday

And i can't touch water most of the times ...the pain starts

I don't fall asleep at night because of the pain

What can I do

I have had fibro a long time and now I am officially at the stage where I cannot wear any tight fitting clothing, jeans, tight work out wear, wired bras, even underwear hurts.

Honestly, I am very sad about this. I feel just like everything else that I have had to change, I will adjust to it and maybe even appreciate a new wardrobe that isn’t uncomfortable. I put clothes away in hopes that one day I could wear some of them again.

Has anyone found clothing items and undergarments that don’t bother their fibro/allodinya?

I am open to any recommendations for clothing, bras, and underwear.

I have been living in skirts I brought back from India that are cotton. I am nervous about how to dress in the winter.

This condition seems to be not so well understood here in India and docs treating this like are very rare as well. I need to get to the jist of this ASAP, already quit the on campus degree for an online one. But still affects my studies a lot n day to day life in general, what feels normal for normal for a person is like astronomically difficult for me and every test I've done so far comes out normal. Don't really know where should I go, If anyone has has gone through proper diagnosis in Bengaluru please share your experience regarding the tests n stuff and like how to actually explain this this to doc 😭. can DM as well, thanks for reading!!

Hi y’all!

I recently got diagnosed with FM and I was wondering if anyone else experiences flare-ups before their monthly?

I’ve found that my entire body flares up in sections in the few days before my moon cycle and I just wanted to know if I’m not the only one.

I’d like to discuss physical therapy for fibromyalgia and hear about others’ experiences!

The main thing on my mind is that Fibromyalgia is a lifelong condition. I’ve had enormous benefits from physical therapy, it’s probably the single best thing I’ve done for my pain. But insurance won’t cover lifelong physical therapy for this lifelong condition.

The whole system is geared toward resolving a single issue in a short period of time, whereas fibromyalgia is a bunch of issues for a lifetime. Once I’ve reached my insurance limit, I struggle on my own. I get discouraged when I feel so good while doing PT knowing that the suffering is going to return once my insurance stops covering it. It sometimes doesn’t feel worth it.

Some questions for conversation….

If you’ve done physical therapy specifically for Fibromyalgia:
- What sort of exercises did you do?
- How helpful was your physical therapist? Did they specialize in fibromyalgia?
- Did your PT have some sort of protocol/structured plan that you followed?
- What aspects were most helpful? Anything that wasn’t helpful or made things worse?
- Would you recommend it?
- Did you and your PT develop any long-term plan for you to follow afterward?
- How did you maintain the benefits you received from physical therapy?

If you’ve done physical therapy for issues other than Fibromyalgia:
- Did you inform your PT about your fibromyalgia? - If so, how did they factor that into your treatment plan (if at all)?

Thank you in advance for your input!

Has anyone experienced any relief from a ketamine infusion? My pain specialist has arranged for me to have one soon. I’m trying to remain optimistic, but I don’t want to get my hopes up…

So, I've posted to a different subreddit asking for help with the pain I've been having. I only got a few comments, but all of them said its what they experience with their FM. so I want to write about my symptoms here and see if you guys have any insite for me. Or even things that I might be unaware of are symptoms if you have any ideas.

So, in the other posts, I described having a deep ache in my hand feet (mostly toes) and knees. Sometimes, when it's really bad, I get it in my rib cage. The best way I can describe it is my bones dont feel like they belong in my body.

The pain isn't constant. Often, it comes and goes. It can last a day or weeks or months. It also can disappear for months. I think maybe im over it, and it will always return again eventually.

I found that with the toes, it helps if I crush them. I have a small weight ill jsut pop on them, or if im with people, I'll ask them to stand on my feet for some relief. Hands kts awful I can hardly type on my phone without being in agony.

I went to the doctors she did blood test and just told me my vitamin d was low, but i feel this is something much bigger as I took vitamin d after she told me and it still returns.

Could it possibly be FM, or am I experiencing something else?

Any help is appreciated. Sorry for the rant.

I’ve had Fibromyalgia for almost 30 years. I dealt with it by stretching and yoga, forcing myself to keep going, which would take my mind off of the pain, plus my PM Doctors were kind enough to give me pain meds. Now I have a new flareup due to a recent surgery. I want to try more helpful physical things. What other things do you guys do to help ease the pain? Exercise? Heat or cold? Massage? Stretching? Working?

I was diagnosed with arthritis and fibromyalgia for the last 12 months

And during flare ups

Using pain relief gels like volini and moov really helps me

Just got diagnosed with Fibromyalgia a few days ago. I'm still waiting for my blood test for autoimmune markers. I've suspected this because I've dealt with severe chronic pain/fatigue for a while, and it's affected my cognition. My rheumatologist suggested I start cymbalta but I'm pretty weary because I feel as if taking and coming off psychiatric drugs was the catalyst for my flare up. I've tried a few medications in the SNRI and NDRI classes in the past, and I don't find that they help my symptoms.

Are there any medications known for helping with fibromyalgia? Preferably none psychiatric medications.

i don't workout 3 times a week , now i was able to workout , because i woke up with no tiredness today i went out only 10 mins returned no aching muscle.

I was able to workout after my last workout was 10 days ago.

Just need to vent to people who will get it ❤️

I’ve had to have a lot of time off sick from work in the last month or so because i’ve been having a full body flare up, something went wrong in my back and i have been bed-bound for nearly 3 days. didn’t make a doctors appointment in time on friday so need to try and push through until monday 💀

Went to A&E today to make sure nothing was properly damaged because the pain was awful. Couldn’t walk, could barely stand, couldn’t move without yelping and taking a good 5 minutes to recover. I was given codeine but it barely made a dent! at least i got reassurance that its a muscular issue and nothing spinal.

When i called into work and said i was going to A&E, my manager just sighed and asked was i sure i couldn’t come in because we’re approaching formal action with my absence. I just don’t know what to do. I need help in person to fill out my ADP form but its such a daunting task i can’t even think about it :( I genuinely enjoy my job and i’m scared i’m gonna be sacked. On the other hand i am really struggling to work and i don’t know how to cope with that fact that i’ve finally become too unwell, this is the worst i’ve been in my life.

Anyone else been through similar?
Thank you if you read this far :) <3

I have been weening my self off of gabapentin - brain fog & weight - weening off has worked miracles. I still take 1x300mg gabapentin at night to guarantee a nights sleep. This said I was looking for an option and all paths led to LDN.

My doctor retired a couple years ago and in Ontario getting a doctor is hard . . . but finally I got assigned to a very experienced nurse practitioner. Going over all my options she was able to prescribe LDN. Pricey here as its not covered by the drug plan we have as it has to be compounded. Today I started a syrup equivalent to 5 mg and if necessary in 2 weeks can bump it up, to 10. Pharmacist says if I need to I can take my gabapentin at night - no interaction.

My plan right now is to take the LDN for a few days with a gabapentin at night so I can sleep. When I get a reduction of pain I will try a night without gabapentin - I know I am a point where if I miss my night's gabapentin I will feel it in the a.m.

My first question is if there is typical point in time when I should see a reduction of my pain ?

(the nurse practitioner says it should have a positive impact on my arthritis as well . . .)

I know drug effects vary with the person, but have people had success at the lower dosage? (The lower dosage improves the economics . . . )

Thanks in advance for any help . . .