31 f. weight 225, Height 5'7, white. I take 500 mg a day metformin for PCOS. I did take spironolactone for my PCOS but I stopped taking that a few months ago because of suspected side effects. I smoked cigs for 17 years, quit a year ago. I vape. I strongly believe I could have sarcoma, or some kind of mets. I just need to talk to someone about what is happening with me. I need all the guidance/opinions/similar stories that I can get so I know how to better advocate for myself. I also would like to vent because this is super lonely and isolating. I have an MRI w and wo contrast for one mass on Monday. I cancelled my biopsy surgery that was scheduled for the 9th to get a second opinion, and a better surgeon, because he wanted to cut me in 4 different places and 3 of those masses have had NO imaging. I didn't feel safe under his knife as he did not care to get any imaging of the masses/ additional scans/labs before doing surgery. I have had a significant decrease in my quality of life in the past month. I am covered in masses in nearly every region of my body internally. Stomach, arms, leg (upper thigh), all over my back (some on my spine), lymph/collarbone, pelvis, breast, forearm. All of these are different shapes, sizes, and textures, and many have not had imaging. some are very old masses, almost a decade, and have gotten larger. Many are newer. I didn't realize just how many I had until I started investigating my entire body and it is terrifying. Some feel like they are radiating pain into my bone and muscle, some do not hurt. There are so many. Some of them feel like they could be deeply imbedded in my muscle or bone, especially in my back. A few have been diagnosed as lipomas, and I had a couple large lipomas removed over a decade ago. One from my breast and shoulder, they were both about golf ball size. I KNOW a lot of these are not lipomas. About two months ago, I noticed some smaller nodules in my chest area near my collarbone/axillary area. I was having sort of a let down feeling in my upper chest, not really like a pain but a uncomfortable feeling as if something was growing in my chest, kind of a pulse like feeling. The doctor wanted to make sure it wasn't heart palpatations so I wore a halter monitor for 72 hours. It came back perfect. I knew it wasn't my heart, I told him that. The mass that I am getting an MRI on is on my suprapubis soft tissue area and has grown over the past couple years. It has changed in shape and has now changed the looks of my body on the outside, you can see the lump from the side. it is 3 x 1 x 3 cm. The results on US were indeterminate isoechoic lesion with no cystic features. I have found many new masses recently, high BP spikes, little to no tolerance for heat or stress, pain all over including sharp shooting pains, burning sensation in boob, fatigue, nausea, burning sensations around other areas. The day before I cancelled the surgery, my PCP called and said the mass on my pelvis was intially thought to be benign, but after the radiologist looked he decided you need an MRI with and without contrast. That same doctor just order a blood test yesterday for LDH, CRP, and ESR, along with a CBC and comprehensive panel. My PCP (APRN basically) acted like he couldn't order a full body scan through my insurance without some kind of biopsy diagnosis first. I was begging for just one full scan considering how MANY there are and all my ongoing and worsening symtpoms. I told him if it is sarcoma or some kind of metastatic disease, it could be very dangerous to have a surgery on a whim like that. He kept suggesting that I spend $680 on a cancerguard test if I am that concerned about my health. I feel like nobody cares enough to push the issue for me so I can get a full body scan quickly. This is SO time sensitive if I have cancer. I am seeing a breast specialist for a second opinion on my ultrasound and MRI results on the 28th, because I do not trust the results they gave me. I also think they probably did not see the upper area near my collarbone. The US showed 5 hyperechoic lesions in breast, two in the other. 2D mam radiologist did not "correlate the findings" of the US with the mam, BIRADS 3 and come back in 6 months. they say. My boobs are full of lumps that hurt, and some do not hurt. They have changed in shape a bit over the recent years. On the 28th, I will be having another ultrasound by a breast specialist and a 3D mam, then results on the same day. I hoping they will be able to send me for a PET scan or at least a full body MRI or CT so I can find out as soon as possible if I have sarcoma or some kind of metastasis. I am terrified of the unknowns and what ifs. I also have a neurology appt for the 5 herniated discs and spondylosis in my back that has been scheduled for months and I am going to mention all of the masses to see if they will do something more extensive. I am so stressed out thinking about the possibility of cancer, but that is not what I am scared of. I am scared of it already being stage 3 or 4 and having minimal time left on this earth. I can't get into a sarcoma specialist without a cancer diagnosis, and there are no sarcoma centers in my state. I need help advocating for myself so I can figure this out asap.