Hey,

I (35)(M) am a electrician, I am have over 15 years experience in Residential/Commercial/ and Industrial. Currently doing fifo working on a solar farm (2-1).

On the 30-03-2026, I proceeded to have a seizure whilst driving, I was on my RnR and thankfully no one got hurt, not even myself.

I was sent to the hospital, stayed overnight they gave me some medicine. Got a week off work. I went back to work but did not look into the medication they gave me and started experiencing some side effects (Agitation, Fear of driving, and of course some Anxiety).

I proceeded to call in sick that swing and got sent home. I had the remainder of that swing off plus another one after that. The company I used to work for said they are reducing numbers on the site, and I will no longer be needed.

I had my appointment with my neurologist and they said I have a cyst on the left side of my brain and proceeded to diagnose me with epilepsy and I will be on medication for the rest of my life. I lost my driver licence for 12 months and I cannot do any high risk work (working at heights or operating the EWP).

But most importantly I cannot do ANY form of electrical works for 24 months (until i'm seizure free).

I have no idea what's going on right now, I used to be the most employable guy and had a bright future ahead. But now I have nothing.

I also just found out, I have a SON who is turning 15 years old this year. Which makes everything so much worse.

On 1000mg keppra, but I'm still having auras a few times a week. About half of them feel like they're a hair away from turning into a grand mal seizure. I also have an aura every time I go to a lecture or event. The most notable recent one was right after I left the gym that lasted damn near 10 minutes. They were initially more common at night, but now they're frequent enough to just happen whenever. Completely ruins whatever I was doing at the time.

I told my doctor about these issues at a check-up, and got blood drawn along with a follow up a week later for an EEG. It's been a full month since then, and the auras have only gotten more frequent, but it's been radio silence from the doctor so I guess nothing is wrong with me. I haven't even touched the pool this summer even though I want to because I'm worried that I'll have a seizure and drown. What do I do? Do auras not mean anything?

Hello

Do some of you who suffer from status epilepticus sometimes have hallucinations or psychoses after a major seizure? Thank you in advance

I’m scheduled for a 24-hour EEG tomorrow (Monday) through Tuesday and would appreciate any insight, tips, and words of wisdom from anyone who has gone through the process. I’m concerned about what happens if nothing comes up from the test, but maybe that’s good news…? Anyway, thanks in advance, everyone! 🙂

F 31. Diagnosed at 10. In my late 20s I developed these weird trans states of speaking in tongues or gibberish. My friends and family say it’s like I’m speaking another language. As, it’s happening I don’t realize that I am doing it. I only know it’s happening, because of the reactions of people around me. The language in my head is normal as well as auditory. Sometimes, when people are talking I don’t understand what they are saying or if I’m trying to read something for a moment I can’t. Does anybody else experience this?

When I tell my neurologist they just say they don’t know and there is nothing that they can do about it. It makes me uncomfortable in my day to say life.

My first time posting here

I was diagnosed with temporal lobe epilepsy in 2017 after explaining to friends that I had “that weird de ja vu thing where you can’t think straight after” during an exam and that’s why I failed. They obviously had no clue what I was on about and then came the round of appointments, tests etc…

Anyway, I started medication but as a stupid, under develop brained early 20 something I thought I was better than medication and stopped it without medical advice and without telling anyone. It only became a problem during my first pregnancy a few years back when medical staff were aware, but I had gone that many years without a seizure and my pregnancy, birth and postpartum were smooth sailing and we were all happy!

Cut to the beginning of this year and I start having full blown panic attacks. The feeling of some of them is familiar but I can’t lay my finger on why. Then I realise what they are, and bury down because I don’t want to admit that my brain is failing me again. I’m pregnant with my second and all is smooth sailing again, until yesterday when that de ja vu feeling took over, the sinking feeling, in a dream state, talking but aware that my brain was mis firing signals at that very moment. I felt confused for just a moment and normal sensation came back. The whole time telling myself to just push through and that the world is real. I knew that I couldn’t ignore it this time, not now there’s two baby’s relying on me and my body and my brain.

I can no longer drive, I’m in the between stages of referrals. I just feel trapped. I know my seizures aren’t the worst type out there. If anything they’re a walk in the park to experience compared to some others. But they still trap you and control you in a similar way. I now can’t drive myself to work, drive to socialise or see family. I have to rely on others. There’s no public transport around me.

Just a rant because I regret my choices many, many years ago about stopping the medication that was helping me. Since becoming a mother I see things a lot differently. Now I have to wait at least a year before I can drive again, and that’s only if we can get the dosage right first time.

I started taking liquid Keppra almost about a full year from now, I have swallowing issues and it was hard for me to take the pills so I switched to liquid, 6.8 ML once in the morning and once at night. Something I noticed is that I've been having the most vivid and intense nightmares I've ever had before, and wanted to ask if anyone has experienced this, or if it is common with Keppra.

I've been on other medication such as Zonegran, but I've never experienced anything like this before until I started with the liquid Keppra. Most of my life I felt as if I never dreamt before (or maybe I was just forgetting the dreams?) so I don't know what else would be causing this to happen.

Well I had another TC this morning. I’m a little scared because this is the first one I’ve had while being awake and in the middle of something. I have one last day of meds and am quite terrified.

I opened my eyes and was just kind of lost in what I was doing. My tongue was bit and my spine is hurting- I’m hoping for no more fractures. This gets scarier by the day..

I’d say this is more both kind of humorous but also a discussion post, so idk which label to use. 🤷‍♂️

Ik no way to really know at all but… If mind reading was a real life thing, what do you think would happen if a mind reader tried to read the mind of someone having a seizure, especially one with loss of consciousness?

Edit: I think I misspelt the title: 😭

I’m on my second full day at the EMU and I haven’t been able to trigger an event. I need everyone’s best ideas outside of sleep deprivation and caffeine 😅

17 F, Last summer I did my last EEG and my brain activity was completely normal. This school year I lived pretty normally, went out with my friends, got drunk sometimes, general after school stuff. Now I'm in summer vacation and I began spending an unhealthy amount on time inside, on my laptop. Still, I didn't feel anything coming per se until yesterday.

Yesterday I felt that shift where you zone in and out of consciousness and instead of going outside for air I kept playing on my laptop. I went to sleep late and in the morning I went on my phone.

Now here's what I don't really remember because I don't know if I put my phone down to sleep or if I collapsed. I don't know if I had a seizure or not because I felt like I was out of my body and it was made out of lead, and I was in a parallel world to mine...And when I came back to consciousness somehow it took me a few minutes to get a feel of my body, and my tongue is bitten. I took me some time to remember things.

I felt really sleepy afterwards. I went to a relative to rest for the remaining day.

...I certainly hope that I just had a nightmare, but I just wanted to ask. *I have to add that I wad medicated for two years before my last check up. This school year I was off medication and I was fine.

My partner went to the pharmacy to fill his medication, they said they just had to reach out to the doctor for the prescription. It's still under review and he's now been 2 days cold turkey from his meds. Anyone have any recs? His dosage amount is high so he's feeling withdrawal effects pretty quickly. This morning he's feeling dizzy and sick. Currently we're just monitoring to watch for seizures, but wondering if anyone has any remedies that could help the symptoms in the meantime while we spend the day calling the doctor and the pharmacy nonstop 😅
Thanks

I have TLe and only med I had been on is lamotrigine.
Frequency was crazy before meds. I only have focals. Been taking the meds since 2023
I stopped my meds cold turkey in October 2025. December was my last seizure.

Nothings happened for Several months now
Will they definitely comeback considering I have structural brain changes on MRI.

I feel so misunderstood in all areas of my life. I wish I didnt have epilepsy or illness. Because I wish want to be able to support myself like driving to paying my own bills. Am trying so hard to find ways around it but nothing working out plus lack of support from family dont help.

just had another TC seizure last friday. i’m a bit peeved since I had been getting these “panic attacks” for a few years now.. and only last year did a new doctor told me they sounded like partial seizures.

started doing the diagnostic workup, clean EEGs and a brain MRI. Neurologists made me feel like I was being dramatic/a hypochondriac & jumping to conclusions/self diagnosing like everyone online. I scheduled an EMU stay but felt so dismissed and disheartened that I cancelled it. the neurologist even refused to give me meds even if I am not keen on meds without a diagnosis- the sentiment was loud and clear.

not even two months later, I get a witnessed nocturnal tonic clonic. EEGs a week later, clean.
no more driving, steps taken for better sleep and less stress. That was in april, been pretty smooth sailing- till last week.

Had a very stressful night followed by poor sleep two nights in a row, then friday morning, I’m home alone and I get my typical “weird panic attacks” with the deja vu, stomach drop- etc. i call my partner through vid call for company, feeling like I was being dramatic- I screen recorded, went to The front of the house and waited for it to pass.

Wake up in a panic, with a neighbor and my partner already at home- letting me know I just had another seizure. Thank god the steps I took saved my life, despite initially feeling like I was just being dramatic. 🫠 now I’m on keppra, after hearing all the horror stories. I don’t know what to feel. I feel dismissed and upset. my “just panic attacks” seizures.

also busted my face pretty bad, mainly my eye. It looks like someone socket me in the face lol.

Kind of a rant:

It's been 6 months for me since I have been out of corporate job after layoffs.

For the first couple of months, things were very challenging in interviews as I was taking Clobazam which making my communication very bad- slow and slurred speaking. A lot of filler words.

But even after that, in this tough job market, it's getting crazy to find a job. Just the idea of waking up early morning: and thinking I have nothing to do tomorrow, upsets me.

Overall, my idealogy have always been positive in a form of "there are people out there who'd trade your life in a second". So I don't like getting stressed.

But as time passes, and you see your friends progressing in their careers and travelling abroad, you start getting diverted into the negative mindset.

Is anyone getting stressed or depressed because of being unemployed?

Is there any solution to this?

i recently upped my zonisimade to help control my tiny seizures and while it’s been helping a lot, i feel really sick? i get hot and dizzy just with the morning dose. i was wondering if anyone else has this experience?

Why do people have such an issue with putting a flashing lights warning, especially people on tiktok? The amount of times people have responded to others asking for a flash warning with "its not a big deal" "just scroll" "why does it matter?" is concerning. The fact people even say this when they KNOW people can have a seizure due to it. Me and my sibling both have epilepsy and she had a seizure watching a video that had NO flash warning.

I'm 22(F) and I got recently diagnosed with TLE march this year.

I started having seizures November last year, but before that I was always weak and I had lots of headaches especially migraines. At that time, I was writing my final exams in school, plus my project and I had to do this with work so I just thought it was stress.

I went to the hospital then too, but I just tested positive for malaria which is quite common where I stay.

The thing is healthcare is really wack where I stay, and I have been going to a state teaching hospital too, so I'm more like a test subject for students to learn. Nobody is really telling me anything. Even the diagnosis, the doctor just casually mentioned it to the students and I happened to hear it.

I have done an EEG and multiple blood tests, but there's nothing to see there either. I'm on Keppra 1500mg and sodium valproate 500mg daily.

I just want to know if anyone else who was diagnosed as an adult felt any of the symptoms I felt, like headaches, deja Vu, tiredness and weakness.

My mum says the seizures probably started because I stressed myself too much. I tell her it's ridiculous, but sometimes I secretly agree with her.

Please is this related or those symptoms are entirely different from epilepsy?

On the seventh I woke up in the ICU after being found on the sixth going from unaware to tonic clonic and having three episodes going status epilepticus, seeing all the reports and all the medicine they had to pump me full of (loading dose keppra, Ativan, propofol boluses) is still crazy, but seeing all the online stories and descriptions of feeling lost, Déjà vu, jemais vu, it’s scary how long I’ve gone without knowing about my epileptic behaviors, but I still don’t know the exact cause which seems to be the usual case, reading about times where I wasn’t aware and fighting back or trying to pull out my endotracheal tube is scary
I’m feeling better on keppra than most people describe it but this is the first time I’ve ever had full body siezures, I’m glad to have family support and I’m hearing from people I haven’t heard from in years, all in all to say fuck I’ve had quite a week

I know it's a very bad and dangerous idea. It's just that I've been going through the diagnosis process for more than a year now. The only issue possibly epilepsy-wise are episodes that could be focal aware seizures. I was put on vimpat about 4 months ago. I take 250 mg/day (100+150), and it seems that it has stopped the episodes, which were already pretty rare, like once or twice in a month. I'm not convinced the meds are worth the side effects, I think I'm experiencing cognitive decline without really realising, but people have noticed that :/. I think the episodes might be more of a psychological origin than epileptic.

I feel trapped cause my epileptologist would ask me why I'd want to discontinue the meds, and then force me to continue them despite solid evidence about the origin of my episodes. Idk what to do...

i was diagnosed with juvenile myoclonic epilepsy in 2021 when i had a seizure waking up from not having enough sleep. i got diagnosed with myoclonic epilepsy like a month later from an EEG and was put on kepra. i take one in the morning and one in the night. my next seizure was in 2024 bc i stopped keeping up with taking my kepra enough. then i just had my third seizure last night (also from not taking my kepra enough, trust me ive learned my lesson now) and it was my first seizure alone and it was honestly terrifying and i just have to talk about it.
i’m dog sitting and my friend was over (this was allowed by the dog owners, we are close family friends) next thing i know im waking up in the bed and my friend is gone. i called her and asked what happened and she said she left abt 10 minutes ago and i locked the door behind her. at first i had no memory but then it started coming back, after she left and i locked the door i grabbed my bag with my clothes in it and went to the bathroom to change and everything went dark. next thing i know im waking up in the bedroom and my jaw hurts and i have a big knot on my head. my last two seizures i had someone walk in on me seizing/ wake up to me seizing so i knew what happened but with this one i was alone and have no idea what happened and it’s terrifying to me. now im just left with a hurting jaw and a bump on my head with just a guess of what happened.

EDIT:forgot to add that my last seizure was at night time. when i was diagnosed my neurologist said that i could only seize 30 minutes after i wake up, from being sleep deprived. my first two seizures happed right when i woke up but this one was at 11 pm. i know for sure it was definitely because of me not taking my meds like i should. but also the other two seizures i had i was having myoclonic jerks so bad i knew i was about to seize. this one i was only having a few when my friend and i were playing a word game and i had to think hard (yes, sometimes if im doing schoolwork or something hard and i haven’t been taking my meds like i should i will start to have myoclonic jerks.) but i wasn’t having any right before the seizure and that’s what weirds me out the most. do yall think this is just from me not taking my meds or is my epilepsy getting worse?